A four-year-old boy died of brain cancer just weeks after doctors thought he had mild constipation.
Logan Allebon had a tumor that swelled to the size of a golf ball before killing him in a few days.
Her devastated parents Nik and Helen Allebon told how her son was sick last summer and often complained of headaches.
They took Logan to the doctor and he was diagnosed with acute constipation.
The GP attributed his repressed appetite and slight oscillation when he walked to the same thing, Wales Online says.
"It was during the heat wave that we thought he was fighting in the heat," said Helen, 40.
Nik, who works at Lush UK, researched his son's symptoms on Google and the search returned something more sinister than mere constipation.
"He suggested a brain tumor, but again, this is Google for you – you type your symptoms and almost always come back with cancer," Nik said.
In an attempt to cheer Logan, Nik suggested a baking session, usually one of Logan's favorite activities, but his son was completely uninterested.
"He could not even stand in a chair and hold on to the side without crying," Nik recalled. That's when they took him to the hospital.
The doctor who saw Logan might say he was a poor child.
"They just had to take a look at it to see that something was wrong, so they admitted it that night," said Nik from Llandaff, Cardiff.
Emergency surgery to remove the tumor was performed three days later in August of last year.
The mass was diagnosed as Medulloblastoma – a cancerous tumor that usually affects the cerebellum and can spread to the rest of the brain and / or spinal cord.
The couple did not know that at the time, but that would be the last time they'd heard Logan speak.
"He smiled at us and managed to tell Mom and Dad, but he never spoke again after that," said Helen, who gave birth to Bodhi, a younger brother to Logan and Sofie, just twelve days after Logan's operation.
A number of complications following surgery, including meningitis and norovirus, as well as the maximum possible dose of radiotherapy, meant that Logan never fully recovered.
Although the operation to remove the tumor had gone as well as the doctors had expected, a second examination three weeks later confirmed the worst.
The cancer had returned and this time it spread.
"We did another MRI and you can see the shadow of the tumor," Nik said.
"It was in the void where the tumor was and was around the brain. It was all the way down its spinal cord and there was a lot of it, some had fallen from the bottom and were floating at the base of its spine."
The couple was faced with an impossible decision. His son would certainly die without continuing the radiotherapy treatment, but with that, he would live for perhaps another month.
For Helen, a look at the MRI scan convinced her to take her son home to die in peace.
Logan arrived home on September 26. Doctors said he would not last the week. He gave up his brave fight on October 14.
It was only nine weeks after the original diagnosis and throughout the time the family said they were overwhelmed by the support and guidance they received from Noah's Ark and the Welsh charity organization for Welsh LATCH.
"They were beyond priceless value, from providing financial support, to arranging a caravan to fleeing after his death, to being there like someone to vent and cry," said Nik, who is walking 100km along the Cotswold Way. money for charity.
About 30 children in Wales are diagnosed with brain cancer each year.
"When you hear this, it does not look like much," Helen said. "But in fact, if you think about it, it's a whole kids classroom."
That's why the couple are talking about Logan, Nik said. They want people to be aware of the symptoms such as persistent headaches, balance problems, illness or behavior change and to keep the possibility of brain cancer in the back of their minds.
They do not blame anyone for the diagnosis of the child, but since then they have delivered posters for general surgery that highlight the symptoms of Medulloblastoma.
Less than 2% of funding for cancer is used for research on brain cancer, said Helen, who started collecting recyclable products to raise money for charity Brain Tumor Research and Support.
"I'm asking people to let me pick up or send me their discarded baby food bags and dog and cat food bags so I can send them to raise funds for the charity," she explained.
So far the charity has raised over £ 52,000 across the UK from recycling items not usually recycled by the councils – enough to fund 17 days of research on brain tumors.
The couple also created a Facebook page called Love from Logan, where they help spread random acts of kindness in Logan's memory.
"We want people to know about Logan – it's a way to keep him in our lives," Helen said.
"It's a place to share the random acts of kindness carried out on behalf of Logan, so that despite leaving us too early, he can still spread his love."
You can donate to Nik's Cotswold Way Challenge for Latch here.
For more information on brain tumors and early diagnosis, visit the Headstart website.