IBD UK, a partnership of 17 professional patient organizations, chaired by Crohn & # 39; s & Colitis UK, makes an innovative campaign to promote better IBD standards.
Individuals with IBD should receive personalized, safe, consistent, high-quality care wherever they live and of any age, from diagnosis to treatment and continuous monitoring, but unfortunately this is not the case today. The IBD standards being launched today aim to dramatically improve the way we care about people with IBD across the UK.
Announced today at the annual conference of the British Society of Gastroenterology, these 59 statements establish what is a good treatment and treatment for patients with conditions, with the goal that every IBD service in the UK will work to meet them.
Based on previous IBD standards
This work is based on the previous IBD Standards, created in 2009 and updated in 2013, which support the NICE 2015 quality standard in IBD and were an integral component of the IBD Quality Improvement Program in the UK, supported by the Royal College of Physicians by 2015. While significant improvements have been made, much remains to be done to reduce variation.
Few services are able to offer psychological support to their patients, IBD Nursing Specialists are missing and half of the patients wait more than a year for their diagnosis. Not only that, the way people with IBD are cared for has changed over the years, with new therapeutic options and a shift to self-management and personalized care and support.
The 2019 IBD Standards were supported by the active involvement of health professionals representing organizations such as the British Gastroenterology Society, the Royal College of Nursing and the Royal College of General Practitioners along with contributions from another 150 through an online survey . In addition, nearly 700 patients were surveyed through Crohn & Colitis UK, CICRA and IA, about what is important to them in relation to the care they receive.
Rukshana Kapasi, president of IBD UK, says: "This is an exciting and innovative opportunity for services and patients to work collaboratively, leading to the shared priority of improving the lives of people with Crohn's disease and colitis."
Discover the benchmarking tool IBD
In addition to the launch of the new IBD Standards, this year, for the first time, IBD services will be compared, measuring how your services address the set of statements. Starting today, IBD Services can register for the IBD Benchmarking Tool, and from October 1st, they will be able to carry out the self-assessment, involving the collection of evidence and clarification of doubts as a multidisciplinary team and with patients.
Reports released in the first quarter of 2020 will show these results, providing an opportunity to promote real change, support business cases, and clarify what services are doing well and which areas could improve.
Together with the IBD Benchmarking Tool, IBD UK, backed by Crohn's & Colitis UK, will launch the first IBD Patient Survey across the UK on 8 July to enable people with Crohn's and Colitis to evaluate anonymously your service and care. The IBD Standards offer an opportunity to lead to real changes in how NHS care is delivered to Crohn's and Colitis patients, making a significant impact and influencing decision-making.
Kapasi concludes: "This version of the IBD Standards provides us with the tools to raise the quality of the IBD Services and thereby the care of people with IBD. These comprehensive guidelines included patient involvement and were endorsed by leading professional organizations. "