Adrian from Dachau district was only 15 when he was diagnosed. It was a day when everything changed – and he barely survived.
- Adrian Micheli is a fighter, an organizational talent and a manager. He must be too.
- It depends on his life. The 22 year old has diabetes.
- He knows what it's like to live with a disease that few people can still imagine, especially for children and adolescents.
It was the day he couldn't get up. The day that all changed. Adrian Micheli was 15 at the time. He called his mother, just couldn't get out of bed. When doctor The receptionist wanted to measure blood sugar, but the value was not even measurable – he was already too high.
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Even today, Michaela Micheli's eyes are full of tears when she talks about the moment. The doctor did a second test, the value: over 500. Normal is between 80 and 120. Adrian had a guardian angel – the family doctor He just said, "They're lucky their son is still up this morning." So the 15 year old had to go to clinic,
Adrian Micheli, now 22, diabetes, Type 1, a pancreatic defect. Your body can't insulin to produce. That's why he needs someone else.
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At the clinic in Schwabing, the family was away Erdweg At that point, it was clear that our lives will be radically different from today. "Nothing else is the same," says Michaela Micheli. “It's like a whole new subject that Adrian and we had to learn.” Train, practice, dive, learn how blood sugar levels measures.
Today Michaela Micheli feels especially like parents with young children who go through the same thing: "You can't say the little one: that's vital, that's why we always have to sting you. It hurts – ten times a day." , the Michelis needed to measure blood sugar eight times a day until the levels stabilized. Adrian took insulin three times a day splash,
Teen out of the way of the earth: disease determines life
However, there are new devices, The 22-year-old can, through sensors and transmitter check your values on the phone. He also doesn't need to inject himself as often as he uses an insulin pump. one catheter It is attached to the hip or abdomen, the pump attached to a hose. Here too the devices have improved. In the past, he used to wake up with various stitches in his stomach because he repeatedly tore the catheter at night and stung the needles in the stomach. He has to fire the pump catheter every three days.
The 22-year-old patient has catheter exchange under control, sensor configuration and the highly complicated calculation of its insulin needsAdrian knows exactly how many BEs, bread units, have food and how to replenish his insulin after eating something. If he does not do this, does not constantly monitor his readings, it can quickly become dangerous.
Video: World Diabetes Day
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Your mother knows how hard this is in the early days for a young person. Be constantly disciplined. As a teenager, if you don't want this shit, you don't want 1000 dextrose connect or be afraid to explode the bomb as you celebrate. Adrian Micheli adds, "Because you just want to deal with the things everyone else has to fight for.
Feel free to live carefree. "Betrayal: diabetes" can easily be ignored if you don't follow your values, "he says. Unterzucker You quickly realize that this can be dangerous. But the long-term consequences are simply too distant for young people, not tangible, just not real. "Children live in the now. The eight year old doesn't care if you say: in ten years you broke your feet," says Michaela Micheli. She always has the consequences in her head. Blindness.
Dachau District Fighters: "Zimperlichkeit Helps No One"
organ failurebad wound healingAdrian too – atypical for his age – always took it very seriously, always meticulous in his values. "Excess sugar doesn't look right," explains the 22-year-old. This is why it is so important to really understand how much you harm your body. "Zimperlichkeit doesn't help because it needs plain text. Because it can easily end up very badly very quickly." But Adrian Micheli doesn't realize he's sick. He is a fighter, a athleteHe emphasizes: "One is stuck, but can live normally." He is currently working as Bufdi on the Helios Amperklinik ambulance in Indersdorf.
But of course, he also has bad times. When everything is terrible, everything irritates. Which he just wants it all to stop. "The fucking days are going to happen again and again," says Adrian, but he has found good ways to reduce frustration over and over. Walking, boxing, meditating – it helps.
Diabetes: Permanent Monitoring Required
It is mostly ignorance of others that makes life more difficult for Adrian than illness itself, as on the day of the math exam. 360 displayed the meter in the morning. too stress can the sugar levels influence – as growth occurs. Adrian had to go to the doctor immediately. He wrote a certificate, decreed peace. The only thing right at the moment: lie, give insulin and drink. But the school insisted: Adrian should go to the doctor. "This is like someone's heart attack and you tell him you need to go to another doctor now, "says his mother.
It was not the only time she was desperate for bureaucracy. Other school She showed "disinterest" in the disease, she recalls. She had provided an information packet before the school change, with explanations of what Unterzucker means that your child would throw it away in that case. "So the school said, He can leave at 12:15 and have something to eat." Even today she is stunned: "He doesn't need this at 12:15, he needs it when he demands the value of sugar!"
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Although she understands the teachers, they will be bombarded with "many regulations – but in this case, is about to die"! She also knows the problems parents of younger children are having diabetes have: Kindergarten teachers and teachers cannot officially inject. "That means you dismiss your child and all morning is still the problem: who monitors the food? Who looks to see if he's low or high in sugar, who sees he doesn't kiss?" Michaela Micheli suffers from affected parents. "Outsiders just can't imagine what they're going through."
For example, there was a time when "I didn't have a bag without scales," says Micheli. A scale with which she food always be able to determine exactly how much insulin do you have to give extra now? Meanwhile, thanks to his discipline and experience, Adrian Micheli has it in his head – no balance.
Understanding in the environment and openness helps a lot
What helps: an environment of understanding and openness. This is the only way friends, classmates and colleagues can help when needed. Adrian is lucky to have great friends. Those who pay attention to it and understand, if a spontaneous overnight stay still requires good planning: when Adrian pisses on a friend, he packs much more than a toothbrush. Spare parts for the Pump, catheter, tubing"In an emergency, insulin – but it must be cooled, spare parts for the sensor device and disinfectants -" I have it everywhere for an emergency. "
In the beginning, your mother had emergency packs dextrose and a note: What to do with little sugar. Adrian knows what it's like: so much pain you can't get up, you can barely move. He couldn't even undo the glucose again. As bad as it can be, if "Katether falls at night, then you don't realize it and wake up to a very high level glucose against. You feel sick, it looks like you have stones in your body. "
Adrian on Diabetes: Sport and time with friends is the most valuable
Until this returns to normal, it lasts. "It's hard to expect that in such a situation, someone will just ask for insulin and get excited to start work."
Adrian is not really the type who likes to be the center of attention, but "If only a young person is involved diabetes thinks, “So if he got it, it can't be so bad.” The story was worth telling. ”He does better when he can play sports or when he is with friends. It's – like other young people too. "If you're in a good environment where you can trust yourself – that's fine."
Michaela Micheli has a parent support group from diabetes established children. Information can be found at Mobil: 01 76/47 33 83 59 Email: Diabeteskids_Sweetlife@gmx.de. Micheli is represented with an information booth on Dachau Diabetes Day.
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